ATRX Network Organizations and Rare Disease Support
The ATRX patient community has evolved over the years globally, and various non-profit foundations have been established around the world to support the patient community. The Rare Disease space has also evolved significantly in recent years. On this page, you will find some of the largest organizations supporting the Rare Disease Community as well as ATRX Foundations. Following them on social media can be helpful to stay up to date with the latest policy changes and breakthroughs, and support offerings near you.
ATRX Syndrome Foundations
ARA Research Alliance (ARA)
Follow on Facebook here: https://www.facebook.com/ATRXResearchAlliance
ATRX-Italia
Follow on Facebook here: https://www.facebook.com/profile.php?id=100071995209813
ATRX-Japan
Follow on Facebook here: https://www.facebook.com/atrxjapan
International ATR-X Foundation
Follow on Facebook here: https://www.facebook.com/InternationalATRXFoundation
Stitching ATR-x SYNDROOM nederland
Follow on Facebook here: https://www.facebook.com/profile.php?id=100064669962829
Rare Disease Support- US
ASGCT American Society of Gene+Cell Therapy
https://clinicaltrials.gov/
https://globalgenes.org/
https://www.nih.gov/
National Organization for Rare Disorders
Rare Disease Support-Latin American & Caribbean
Group of Alliance, Investigation and Support in Rare Diseases
Rare Disease Support-Canada
http://www.raredisorders.ca/
Rare Disease Support-Europe
https://www.eurordis.org/
Rare Disease Support- Africa
https://www.rarediseaseghana.org/
Rare Disease Support- Australia
https://www.geneticalliance.org.au/
Rare Disease Support- Asia Pacific
https://www.apardo.org/
Rare Disease Support- Middle East & North Africa
