ATRX Network Organizations and Rare Disease Support

The ATRX patient community has evolved over the years globally, and various non-profit foundations have been established around the world to support the patient community. The Rare Disease space has also evolved significantly in recent years. On this page, you will find some of the largest organizations supporting the Rare Disease Community as well as ATRX Foundations. Following them on social media can be helpful to stay up to date with the latest policy changes and breakthroughs, and support offerings near you.

ATRX Syndrome Foundations

ARA Research Alliance (ARA)

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International ATR-X Foundation

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Stitching ATR-x SYNDROOM nederland

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Rare Disease Support- US

ASGCT American Society of Gene+Cell Therapy

National Organization for Rare Disorders

Rare Disease Support-Latin American & Caribbean

Group of Alliance, Investigation and Support in Rare Diseases

Rare Disease Support-Canada

Rare Disease Support-Europe

Rare Disease Support- Africa

Rare Disease Support- Australia

Rare Disease Support- Asia Pacific

Rare Disease Support- Middle East & North Africa