ATRX Research Alliance is a global community dedicated to improving the quality of life of those affected by ATR-X syndrome and accelerating research to find treatment.

SUPPORT THE CAUSE

NEWLY DIAGNOSED

Meet Benjamin

Benjamin was born in June 2017, nearly a month early. He struggled with feeding as a newborn. At the 6 month mark, his doctor identified that he was missing his milestones. At 9 months, he was referred to early intervention services and he has been in therapies ever since. At 2 years old, after much searching, the source of Benjamin’s struggles was identified as ATR-X Syndrome. Even with all his struggles, he’s a happy little boy and is very loving toward his siblings and family. Benjamin just started school at the local school for the blind, and his teachers say they have never seen a child smile as much as he does.

Our Warriors

Meet some of the warriors battling ATR-X syndrome.
They are the bravest, strongest and happiest people we know.

From the blog