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In honor of Rare Disease Day, February 28th, 2023, Please Support This Film

by Jennifer | Feb 20, 2023 | Uncategorized

In honor of Rare Disease Day, February 28th, 2023, The  “Too Rare To Care”  team is launching their documentary film trailer, “RARE.” This is a wonderful film that can be leveraged in so many ways to help the Rare Disease community fight for...

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  • In honor of Rare Disease Day, February 28th, 2023, Please Support This Film
  • We have a lot planned for 2023, and are excited to have you on this journey with us.
  • Two Leading Rare Disease Organizations Join Forces to Enable and Accelerate Patient-Led Engagement and Advance Research
  • Menkes Disease Treatment on the Horizon, After Nearly Three Decades

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    ATRX Research Alliance is a global community dedicated to improving the quality of life of those affected by ATR-X syndrome and accelerating research to find treatment. 

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    ATRX Research Alliance, EIN 93-2674199 is a non profit organization with fiscal sponsorship through Rare Village Foundation. EIN 83-4699994

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