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In honor of Rare Disease Day, February 28th, 2023, Please Support This Film

by Jennifer | Feb 20, 2023 | Uncategorized

In honor of Rare Disease Day, February 28th, 2023, The  “Too Rare To Care”  team is launching their documentary film trailer, “RARE.” This is a wonderful film that can be leveraged in so many ways to help the Rare Disease community fight for...

We have a lot planned for 2023, and are excited to have you on this journey with us.

by aha-webdev | Nov 1, 2022 | Uncategorized

Hello everyone, we hope everyone had a wonderful and safe Halloween! As we enjoy this fall season and enter into the holiday months, a spirit of gratitude fills the air. We recently sent out this newsletter to our donors to thank them for their support, and share...

Two Leading Rare Disease Organizations Join Forces to Enable and Accelerate Patient-Led Engagement and Advance Research

by aha-webdev | Oct 12, 2022 | Uncategorized

AMAZING NEWS for the rare disease community! We are thankful to those who helped make this merger happen, and we are excited for the progress that will result from this alliance. #raredisease #improvingqualityoflife #acceleratingresearch #ARA Two Leading Rare Disease...

Menkes Disease Treatment on the Horizon, After Nearly Three Decades

by aha-webdev | Oct 3, 2022 | Uncategorized

Hats off to these pioneers for their work to improve the lives of their patient community!!! Menkes Disease Treatment on the Horizon, After Nearly Three...

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  • In honor of Rare Disease Day, February 28th, 2023, Please Support This Film
  • We have a lot planned for 2023, and are excited to have you on this journey with us.
  • Two Leading Rare Disease Organizations Join Forces to Enable and Accelerate Patient-Led Engagement and Advance Research
  • Menkes Disease Treatment on the Horizon, After Nearly Three Decades

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    ATRX Research Alliance is a global community dedicated to improving the quality of life of those affected by ATR-X syndrome and accelerating research to find treatment. 

    *All information contained on this website has been reviewed and approved by our Scientific Advisory Board.

    ATRX Research Alliance, EIN 93-2674199 is a non profit organization with fiscal sponsorship through Rare Village Foundation. EIN 83-4699994

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