ATRX Research Alliance
  • ABOUT
    • Mission and Vision
    • Meet the team
    • Scientific Advisory Board
    • Partnerships
    • Research Initiatives
    • Documents
  • MEET OUR WARRIORS
  • RESOURCES FOR FAMILIES
    • What is ATRX?
    • Newly Diagnosed
    • Patient Community
    • Network Orgs and Rare Disease Support
    • Research Literature
    • Special Equipment and Patient Care – US
    • Get Involved
    • 2026 Scientific & Family Conference
  • RESOURCES FOR RESEARCHERS
  • GET INVOLVED
  • DONATE
Select Page

Five Years of Driving ATR-X Research Forward

by Jennifer | Nov 8, 2026 | Research & Community Updates

What We’ve Built Together As the mother of Benjamin and Gabriel, who both have ATR-X syndrome, I know how much we all want to see meaningful therapeutic options become a reality for our children and loved ones. Five years ago, we founded what is now the ATRX...

We have a lot planned for 2023, and are excited to have you on this journey with us.

by Ed Smith | Nov 1, 2022 | Research & Community Updates

Hello everyone, we hope everyone had a wonderful and safe Halloween! As we enjoy this fall season and enter into the holiday months, a spirit of gratitude fills the air. We recently sent out this newsletter to our donors to thank them for their support, and share...

Sidebar

  • Newly Diagnosed
  • Donate

Recent Posts

  • Our Kids. Our Future. Our Momentum.
  • Five Years Ago, We Started With Hope: A Personal Letter From Our Founders
  • Five Years of Driving ATR-X Research Forward
  • In honor of Rare Disease Day, February 28th, 2023, Please Support This Film
  • We have a lot planned for 2023, and are excited to have you on this journey with us.

Recent Comments

    Archives

    • November 2026
    • February 2023
    • November 2022
    • October 2022

    Categories

    • Founder's Letters
    • Rare Disease Community Updates
    • Research & Community Updates

    Meta

    • Log in
    • Entries feed
    • Comments feed
    • WordPress.org

    ATRX Research Alliance is a global community dedicated to improving the quality of life of those affected by ATR-X syndrome and accelerating research to find treatment. 

    *All information contained on this website has been reviewed and approved by our Scientific Advisory Board.

    ATRX Research Alliance, EIN 93-2674199 is a non profit organization with fiscal sponsorship through Rare Village Foundation. EIN 83-4699994

    Newly Diagnosed
    Donate
    
    
    